Special Notice

Hi Everyone

Catch me on 98fm at 1.45 today for a live interview from Newcastle!!

Love Naoise
xxxx

Day +21

Hi everybody, today I’m here five weeks and today was an up and down kinda day. I’m still not sleeping that well and I wake up very early, this morning I woke at 6 and I couldn’t get back to sleep. I had some melon (which I sent Dad out for yesterday) and some toast for breakfast. Then we had our musical wake up movie, this morning we watched High School Musical 3, which was great. My teacher came in and we did Nelson Mandela timeline which was interesting. Amanda, the play specialist, and me made a cool flower. I had some waffles and fish fingers for dinner followed by a game of Wii. I got my first St Patrick Card today from Aine, my little sister; it is a brilliant card with her own writing on it. I stuck it up on my wall, where it looks great. I hope I get a couple more cards!. That’s all for now, Friends is back from the start which is brilliant. Thanks to everybody for you mails, texts and comments it is lovely to receive them and it does cheer me up. P.S. Amanda enjoy your holiday. Nite nite, Naoise.

Day +20

Day +20
Hi everybody, today was a hard day. Again I didn’t sleep too well and woke early and tired. I had some custard for breakfast, because when you feel like it, you need it ! Dad and I watched Greece the movie and sang most of the songs, which kinda cheered me up. My teacher came in this morning and we did some history and geography which was ok. Tomorrow we are going to learn about Nelson Mandela. I had more potatoes and carrots for dinner, which were just as good as yesterdays. After dinner Amanda the play nurse, came in and we made a lovely paper flower, which we are going to hang on the wall tomorrow. Then we had a mad couple of moments. We closed the current to the corridor, put on my ipod really loud and the three of us danced around, it was great fun and cheered me up a little. My dad is such a good dancer (not), even the nurses who came in to see what the noise was about laughed at him. Clare and a colleague who is doing his dissertation on the use of the Wii for recovery came in and we did some exercises. After all that I needed a shower. The good news is that E4, which showed the last episode of Friends yesterday, has started right back at the beginning. I love Friends. My bloods continue to be good but I think I’m going a little mad being in ‘stuck’ in this room for so long. I think this is making today very hard, let’s hope tomorrow will be better. Thats all from Room 8, Ward 23 of NGH. Nite, nite, love Naoise.
PS – thanks for everybody for your kind mails and messages.

Day +19

Hey everyone, another hectic and good day. I woke up at 4 this morning and struggled to get back to sleep so when dad came in at 8 I was very tired. You’ll never guess what I had for breakfast.... yes I had weatabix!, it was only ok so tomorrow I might have a pancake . We then watched Hairspray the movie and I sang all the songs, that really woke me up and put me in good form. I felt hungry then and had a full bowl of chicken soup. Amanda came in around lunch time and stayed for ages and we made a really cool bag – to add to my collection. Clare came in then and we played Wii Fit and did a couple of exercise. Dad set himself up on the Wii but it told him that he was obese, which he wasn’t very happy with, also he wasn’t very good on the wii and both Clare and me had a good laugh watching him trying to do some of the challenges. Tomorrow we are going to have a Wii tournament with Clare, dad and me – should be great fun. My teacher came twice, but I was busy each time so I had no school today which was very sad. One of my doctors (you can see him in the photo) came early this morning to tell me that my bloods continue to improve and they are all very happy with my progress. The best part of the day was my tea, I’ve been living on frozen food for the past month and this evening Dad made some fresh mash potatoes and fresh carrots with butter it was absolutely lovely, I really missed my fresh food. Mam called and I was able to talk to Harvey and Gissmo, who had loads of news. Then Bridget and Aine called and Aine told me a very funny joke which made me laugh. Now for the Temple Street technical people I thought you might be interested in some of my blood results: Platelets 36; WCC 2.6; Neut 1.87; Lymph 0.12. Well that’s all for now, it seems that we have a good crowd for the jump I’m off to sleep now, nite nite. Love Naoise.

Day + 18

Hi everyone, Mondays are always very busy and today was no different, I think it is because the weekend was so quite around here that makes Monday seem so busy. You’ll never guess what I had for breakfast, yep a pancake. Dad and I played Wii for a little while, then the teacher came in and we did English, which was ok. I had a little break and then Paula came in and we did ‘marbling’ painting. I had been talking with my Dad earlier and he agreed to do a parachute jump with me when I’m 18. I got Paula to also agree, I even got her to sign a contract – so she has to do it now  we will do it for the bubble club (the charity that supports the Bone Marrow Unit here in Newcastle). I sent Dad to the shops (which are in Newcastle city centre) to get some food. I fancied some rice and soya sauce but I wasn’t sure that I was allowed it, but by the time he came back Paula had confirmed that I could so I sent him back to the shops. Dinner was yummy, tea was fish and chips, but the fish wasn’t great. My physiotherapists came in and we did my exercise on the Wii Fit which was brilliant fun, my legs were wobbly by the time I was finished. I also watched a little bit of Hairspray, had a shower and watch friends, so it was a very busy day. The doctors continue to be happy with my progress and my bloods (neutrophils are now 1.15) are improving. So a hectic day, I’ve just had my evening medicine and I’m going asleep now. Thanks for all the comments, I really love getting them. Nite, nite, Love Naoise

Day +17

Hi All, today was a good day, I woke up about 8ish and had a little rest before breakfast which was three pancakes, 1 with cheese and the other two with butter, they were yummy. Then after another little break I had a game of Wii Music, which I love and I’m getting better at. Then I had a bowl of custard, which dad overcooked, but it still tasted good. Amanda came in at 1 and we started to make a really cool bag, we have to finish it off tomorrow. Then I had my dinner which was some tuna pasta bake, it was delicious but very heavy. Dad and I then had a movie afternoon and watched Hitch which was a great film. All my wires and connections were taken off so I was free to move around and have my shower. Dad and I played a game of darts – which I won again. Tonight I’m having a blood transfusion to help with my energy. As well as the blood I have to have a load of other medicine in the evening and tonight a funny thing happened. I had my orrisapan which made me feel drunk and I got all giddy, then I did a funny thing... I told the two nurses who where setting up my medicine that my dad fancied one of the other nurses... opps.. I must of been drunk ! Now we are watching Dancing on Ice and then I’m going to go off to sleep because I’m getting very tired.

Day + 16

Hi Everybody - Today is Saturday and Saturday is hand over day. Mum and Nana have gone home - hope you had a rest Nana and thanks for staying with me ;-)!. Dad brought some great things over, he brought the Wii from home and a great picture from Aine plus Aine gave him a hat for me - to keep my head warm. Dad and me played the Wii most of the day - we played Wii music and Wii Fit, they are brilliant games (thanks Gaga). My apatite is getting better; I had pancakes for breakfast, lasagne for lunch and a plate of chips for tea. The nurses’ love when I eat as I don't have to have a feed through my tube. I stayed awake all day again but it's now 7 o’clock I'm very tired and I think I'll missed Ant & Dec!! Speaking of missing, I'm missing everybody at home. I love the comments and the mails they really help to cheer me up.