Day +28

Hi Everyone, today was so so so much better than yesterday cos I didn't get sick at all!! I felt a bit sick a few times but I was grand. Today I had a waffle for breakfast, then the teacher came and we did some English. We wanted to go for a walk so mum ran into town and got me some clothes, she got me a pair of pink skinny jeans and some t-shirts and a jumper. When mum got back we discovered the security tag was still on the jeans, Mum was wondering why all the alarms were going off in every shop she went into! Paula and Andy came while mum was in town. I did all my Wii and physical exercises. Then I had a bowl of rice crispies which weren't very nice so I had a packet of crisps instead, its great eating whatever you fancy! We went for a walk outside today we bought some chocolate buttons and I ate the whole pack. We couldn't sit on a bench to watch the world go by cos there were all soaking wet it had been raining. We met some of the docs and Andy on our travels so we stopped for few chats. I was so so tired when I got back but have to have my shower.. that woke me up a bit. Then mum changed my line and then I had some mini chicken fillets for dinner. The doc came and is happy with me. My neutraphil count today is 1.72 which is not bad as I didn't have my blood booster medicine. The best news of the day is that my anti-rejection drugs have been halved which means I am not hooked up to any machines from around 1 to 8! It means I can actually go to the bathroom!! I can also give myself my medicines through my tubes.. although I spilt a bit on my bed and started screaming and gave Mum the fright of her life... she said I was a bit of a drama queen.. I wonder where I get that from :-)...!! Thanks to Collete, Dara and Fred for the lovely card and the fake tatoos... we're giving the nurses the 'kiss me I'm Irish ones :-))! Thats all for now... TTF Naoise xxx

Day +27

Hi Everyone, well today the big news is that I went outside!! I woke up after not a bad nights sleep. I'm getting used to being off the drugs that make me sleepy. The mummy read to me for a while, then I had a ham wrap and finished watching our DVD. Then I was so excited waiting on my tranfusion to end so I could go out. I got dressed but then felt really ill and got sick but the good thing was I managed not to get any of it on my clothes as they are the only set we have here in Newcastle!! It was so weird wearing my skinny jeans again and the strangest of all was wearing socks and shoes..!! We set off and walked out to the hospital entrance.. not a sore ankle or hip pain in sight. We decided to bring a packet of crisps, so we sat on the bench and ate them. Then we walked around the side entrance back into the hospital. By that time my legs felt a bit wobbly because I was tired. Then when I got back I had a bit of chicken for lunch and then guess what I was sick again! Then Paula came and told us there was a helipcopter outside so off we went again and sat on the bench and watched the helicopter it was huge!! It got a bit cold then so we headed back to my room. Andy came and I did my Wii excercises, he let me off my physical excercises because I had been for a walk. Yay! Then Paula came and we finished our invite to the party. We just have to hang it up outside now and we're done. Then I had my shower, then guess what happened.. I was sick again!! After that I felt better and had a cheese wrap. I didn't do very well taking drinks today so I have to have a drip with some water in while I sleep along with my feed. Yesterday I had some medicine to boost my blood levels up so they are good today, my neutrophils are 2.17. Will hopefully have the donor versus me test results again this week so fingers crossed my percentages will be up again! I can go out everyday now between tranfusions and however many times I like. When I came back I took off my ugg boots and socks and I had a rash because my feet are not used to them, it was a heat rash! I watched my usual double bill of Friends and then Mummy learned how to change the dressing on my line. I'm very nervous getting my dressing changed and never seem to get used to it. Mummy did well though and I will let her do it again tomorrow if she behaves herself :-)). Mummy thought she was a surgeon when she put the gloves and the hair net on. TTFN Love Naoise xxx Loads of thanks to Nana for the Paddys Day Card..thanks to Marie from the clontarf Credit Union for her card and thanks to Daddy, Bridget and Aine for my mini card! I love getting post from home. TTFN love Noaise xxxx Oh and very funny Brian Byrne for your joke about me being a car park attendant now!! xxxx

Day +26

Hello Everyone, today I got the best news ever!!! I am allowed out into the hospital grounds tomorrow!!! I can't believe it, it was such a surprise as my cells versus the donor cells went up which is not good. I need to have mostly the donor cells in my body and not mine. They went down to 51% but am now at 61%. I am so happy it will be really strange to go out and it will be really strange to put clothes on!! Today started off as normal, had cornflakes for breakie, watched a DVD. Then Andy the physio came down and we did some of my excercises he is coming to the St. Paddy's Day party so at least there will be a boy there now :-)! Then Elizabeth the teacher came and we did Maths during which I was sick! Sorry Elizabeth. Mum went into town and bought me a cool green tracksuit for next Tuesday! Its gone off to be washed lets hope it doesn't shrink!! After that Paula came and we made a fab necklace that Mum wants to borrow. I had a cheese wrap for my tea. Today seemed to fly by and I'm now so tired but so excited! Will let you know how I got on!!! Love Naoise xxxxx

Day +25

Hi Everyone, today was a good day and I didn't feel sad at all. I got sick in the morning but felt much better afterwards. The teacher came and we did some maths. I finished my Nelson Mandela project and its now on the wall. Mum and I watched the second part of Legally Blonde. We played at bit on the Wii again, Mum did her jogging she is trying to burn off all her calories and I'm trying to put them on :-). We have a competition every Friday so we are all practising hard to beat each other. The teacher came again in the afternoon and we did some more maths, easy fractions this time it was grand. My bloods are down again Neutrophils are 0.82, I'm getting another boost to make them go up tomorrow. My platelets are going up on their own, they are now 107! A little boy called Dylan who has been on the ward for +49 gets to go to the half way house tomorrow, hopefully we will be there soon too!. It would be sooo great I'm itching to get out of here, even to walk down the corridor would be fab! I did my usual daily ritual had my shower and watched Friends. I ate some chicken for lunch and then I got sick but felt well enough to have a bowl of rice for dinner. All this getting sick is not putting me off food at all! I lost a bit of weight today so I have to start eating more and drinking lots of milk. I got a lovely surprise in the post today, Bridget's friend Caitrin sent me a package, it was make your own St. Paddy's Day card. Its great as I'm making one for all the nurses and they are gonna be so cool. Thanks Caitrin,the cards you send are lovely too!! Am so looking forward to my party, Westlife are going to be played all day long and we are going to have digestive biscuits with green icing..! And Lisa the nurse from Scotland got me some green and orange nail varnish.. can't wait to paint my nails. She is the best!! Gonna log off and watch All Stars Family Fortunes, its on every night and I've become a bit of an addit. Lots of Love Naoise xxx

Day +24

Hello Everyone, today was much better than yesterday. I wasn't half as sad and I also wasn't very sick. I slept OK but woke up at five again!! I had cornflakes for breakie, watched the DVD Legally Blonde 1, we are going to warch Part 2 tomorrow. Then we played Wii fit. I did some skiing and mum jogged, she was ready to collapse afterwards :-)! We played a bit of golf and croquet. Then Paula came and we made bracelets and I ate a bit of chicken for dinner and some noodles for tea. I'm going to have my feed while I'm sleeping. My weight went up a bit today which is great! Then had my shower which I hate! I watched my usual two episodes of Friends and am gonna watching Dancing on Ice. We decided today that I will make one huge invitation to my party on St. Patricks Day and stick it on my door. Everyone that comes to the party has to sing an Irish song or do an Irish dance, we're calling it the I-Factor (Irish Factor). We'll see if any the nurses here in Newcastle have got talent!! The nurse who has been looking after me all day is going to sing When Irish Eyes Are Smiling. I have to get something green to wear so I'm sending Mummy off into town to get me something, along with a long list of the foods I fancy! I got some medicine to boost my blood count and my Neutraphiles are 2.4 today! Talk to you tomorrow.... I still haven't done my homework......xxx

Day +23

Hello Everyone, Today was hard for me. I think its because I am now off two of my anti-sickness drugs so coming off them has made me sick. On top of that am also off some the meds that relax me so my body has to get used to that too. I'm not sleeping at all well at night and I'm getting very upset during the day. I miss everyone at home so much. One of my lines was blocked and I was really worried but Lisa worked her magic and got it working again, I was sooo releived. My neutrophil count is down again today they are 0.41 so the doc said she was going to give me a boost of medicine that will make them go up again. She said I was doing really well. Mummy came this morning and Dad went home. Mummy brought Wii Sing It with two sets of songs Hanah Montana and High School Musical 3. She als brought some DVDs so that cheered me up for a bit. We sang High School Musical and some Hanah Montana, we have two microphones so we did a duet. I won :-)! We watched 27 dresses and then Paula came in. We finished of the caterpillar and we are planning a huge huge St Patricks Day party in my room. I have to start working on the invites and we have some really exciting things planned for the party... so watch this space. I had my shower, did a bit of my jigsaw and had some chips for my dinner. I have to start eating a lot more as I'm losing a bit of weight. Then watched Friends and am going to watch Ant & Dec. Did everyone here me on the radio yesterday? They played it again today too!! I would love to hear it! Am really tired so hopefully will sleep tonight! Love Naoise oh just remembered I still haven't done my homework :-(!! xxx

Day +22

Hi all, another night which I didn’t sleep. Because of my medicine, feeding and tube problems, I was woken up at 22:00, 12:00, 2:00, 3:00,4:00, 6:00 & 7:00 so with all these distributions it is hard to get a good night sleep. Dad stayed last night and we have spoken with the doctors and they have changed my schedule for tonight so let’s hope this works. Breaky was a waffle and Camp Rock movie. I had no teacher or play nurse today as they were all off so my day was kinda of long that is until lunch time. Then Sue Lawlor from Temple Street Fundraising office called to ask would I do an interview for Dublin 98 FM CARE4KIDS Radiothon. I was really excited and we had to wait till 13:45 when Trinna from the Radio station called. I was very nervous but also very excited and I enjoyed answering all her questions. The interview was played this evening about 6:15 and will be on again tomorrow – don’t know when. It really cheered me up and brightened my day. My physiotherapist came in with a Wii Game competition. I have to practice for a week and then see if I can beat my Dad by then end of the week; it was good fun to practice. Some of my medicines are being reduced, which is a good sign, but I’m not feeling great at this stage. I really miss everybody. Nite nite, Naoise.