Day +126

Hi All, I’m very sorry for not keeping you all up to date but as you’ll see it was a very hectic week. I won’t go through day by day update instead I’ll just talk about the big things. You know I had a biopsy last Friday, well it seems that every time I have a biopsy something dramatic happens and this case was no different. I thought I got over the biopsy quite quickly and I had a reasonable ok day on Monday and Tuesday with ok nights (only up about 3 to 5 times per night). But what was happening was my weight was gradually going up and up. I came in at around 32kg and three weeks ago I was 35kg but by Tuesday night I was heading towards 41kg. Everything here is measured, checked and weighed, so when my weight started going up and up the doctors started to get worried. It turned out that my kidney was not working quite as well as it should and so I was taking on more fluid than I could get rid of. The docs here were quite worried and kept looking at all the fluids that was going into me. They decided to change a lot of my meds from transfusions (which require the medicine to be diluted with water) to direct feeds into my tubes. They also said I had to limit my drinking to 150mls per day, which was nearly impossible. Dad went home on Wednesday morning and he was only home a couple of hours when he got a call to come back to help out. My mums dad (gaga Christy) was over for another visit and at the start wasn’t allowed into my room. So dad came back on Thursday morning and he brought Nana Ruth and gaga Michael, so now I had a small crowd and surprise surprise on Thursday afternoon the doctors decided that my grand parents could come in. It was great to be able to spend some time with them. Also by this stage I still hadn’t wee that much so the doctors changed my medicines and put me on a huge amount diuretics. Everybody seemed a little concerned and we sat tight and weighted. Late on Thursday night all changed again and I started to wee for Ireland, in fact I kept on going all today. Now the next issue is this. As you know I’ve been pooing loads for the past couple of months, well now I seemed to have stopped, or as Prof Cant say’s ‘I’m on a go slow’. Speaking of Prof Cant, he came in this afternoon and said that he was very pleased that my kidneys were back working and that the biopsy results from last week showed some improvements so he was a little happier, but still concerned about the lack of poo. So as you can see it’s been a very busy couple of days with lots going on, as usual.
Oh, the last big piece of news is that I got a personal letter from Brian Cowen on official government paper. Everybody over hear was very impressed that our Taoiseach took time to send me a letter. So that’s all for now, lets hope that everything returns back to normal real soon. Thanks to Marie for my bag, you are right a lady can never have too many ! and thanks to Ross for my cool dvd – I love it.