Day +94

Hi All, today is Sunday which is usually a nice quite day, but this Sunday wasn’t. I was up at 5 this morning when Dad told that I had two horrible things to get through. First I had to have an BG tube and then I had to go for another biopsy on my gut. These are two of the worst things you can do and I hate doing both of them. I was very worried and couldn’t go back to sleep so we watched the Bee Movie (I love) and Camp Rock. The nurses came in at 9 to do the NG tube. An NG tube is a thin tube that goes up your nose and is treaded down the back of your throat and into your tummy and it is a horrible feeling when it is going down your throat. Paula the play nurse was there to help me and Jenny and Karen (my two nurses) where great. When the tube was down they attached a bag to the end of the tube and it took all the fluids out of my tummy, which should help me not be as sick as I have been over the past weeks. Just when we were finished the ambulance people arrived to bring me to the RVI. The hospital I’m in is closing down slowly so all operations have to happen in another hospital in Newcastle. It is a very strange, and not great, feeling travelling in an ambulance. This is my 4th gut biopsy and this one was required to see if my GVHD had gone and if my upper and lower gut had improved. Having this done on a Sunday is actually not a bad thing as it means that you are not waiting for ages and ages. The operation was over and I was back in my own bed by four o’clock. Every time I leave my room all the nurses and helpers come into my room and clean it from top to bottom so I know I’m coming back to a lovely clean bed and room. Then I had another surprise. One of my best friend Laurna (from my school) and her mum had arrived over with my mum. I’m sorry Laurna that I was so wrecked that I couldn’t spend a lot of time talk, but it was lovely to see you and thanks for coming over. Sunday is hand over day, so Mum is staying this week and Dad and Nana are going home. Thanks Nana for coming over to see me. Well that’s all from an difficult and exhausting day. Lets hope that my results help the doctors to decided what to do next so I can get better. That’s all from Newcastle. Lots of love Naoise.