Friday, February 20, 2009

Day +7


Hi All, it’s been one week since my transplant and it has been a tough week and I don’t yet see or feel any difference. The doctors say that is what they would have expected. Let’s hope that week 2 brings some better days. Today was ok. As usual I slept for a lot of the day; tummy was upset and rash remains. Paula came in to me today; we played with my Hanna Montana toys and made a cool bracelet. My physiotherapist also visited at the same time as Paula and the all of us looked at a video of three children who had JIA, like me, before and after their treatments. The results were amazing, each of them were very flexible and had full movement. For the first time I did all my exercise – bike and wobble board (have a look at the photo). I also found out that we are having some famous visitors next Friday, I won’t say too much at this stage. That’s all, bye for now. Love Naoise xox.
Posted by at

15 comments:

  1. BarbaraFebruary 20, 2009 at 1:30 AM

    hi naoise i hope u r feeling better. i will ring u latter. i miss u soooooooooooooooooooooooooooo much. Lots of love Emma P.S.love ya xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxP.S who is coming Love emma xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    ReplyDelete
  2. EileenFebruary 20, 2009 at 5:45 AM

    Hi Naoise - Well done you getting up on your wobble board! What a little fighter! Great to hear that Paula is helping to keep you busy so hopefully it passes the day a bit quicker. It must have been great to see how well the other children are doing and just think that will be you in a little while - Wow - there will be no stopping you then. Your Mum wont be able to keep up with you! Talk soon Love Eileen xxx
    ps. dying to know who the visitors are.......

    ReplyDelete
  3. UnknownFebruary 20, 2009 at 9:29 AM

    Hello Naoise Emma and Beibhinn here. Just wanted to say hi. Great job on the WOBBLE board.I hope you liked the movie and I'm sure you will have a great time Next Friday.
    Have to go!
    Bye!!!!!!!!!!

    ReplyDelete
  4. ColleenFebruary 20, 2009 at 10:48 AM

    hi naoise hope you are feeling alright i wonder who the famous guests...... are you must be in a lot of pain
    but you are so brave
    i hope the rice crispies buns were nice
    llots of love
    Colleen
    xxxxxxx

    ReplyDelete
  5. GeorginaFebruary 20, 2009 at 11:13 AM

    Hi Naoise
    today my friend came and played we had good fun. Looking forward to playing with you soon. I hope tomorrow is okay. Bye for now, love Eva

    ReplyDelete
  6. Patricia and NiallFebruary 20, 2009 at 11:47 AM

    Hi, Naoise,

    Aisling has just set me up again - the last time i succeeded in sending you a message but afterwards I just couldn't get my messages to go. Aisling has just done some magic so I hope it works this time.
    We were thinking of you and praying very hard that your transplant will be a great success. You were so brave and it is great to see you getting stronger. I haven't been able to mannage the wobble board but i am going to try again now I see how well you are doing. Jack, Caoimhe, Cormac and the young McHughs are here for a sleep-over and we are planning great celebrations for your next visit to Wicklow Love you lots, Big Hugs from Patricia & Niall

    ReplyDelete
  7. UnknownFebruary 20, 2009 at 11:57 AM

    Hi Naoise, THis is Ailbhe's Mum and we just figured how to see your pictures and read your story. You are really brave and we are glad you are a little better today. Ailbhe, Lucy, Tara, Sophie, Isabelle,Euan and Ella all say a big HI from Ireland XXXXXXXXX

    ReplyDelete
  8. PaulaFebruary 20, 2009 at 12:27 PM

    Hi Naoise, we are intrigued as to who is coming next Friday......how exciting! It's great to see a picture of you out of bed, you are a little trouper, well done!
    It must have been nice to see the other children with JIA and how they recovered, I hope that helps you through the tough days. I hope next week is easier on you, you are such a brave little girl, we are all very proud of you. Love, Paula xx

    ReplyDelete
  9. Sadhbh+OisinFebruary 20, 2009 at 12:44 PM

    Hi Naoise
    I went to the zoo with Oisin and Caitlin. It was lots of fun. Me and my mom went roller blading. She was so nervous at the start.
    From Sadhbh.
    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxoooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    ReplyDelete
  10. Sophie and Isabelle BurkeFebruary 20, 2009 at 3:06 PM

    Hi Naoise

    Just realsied hoe to get into the blog, we are not very teckie in thos house, we just got the emails that Lilian fowarded to us, its great to see the pictures, you definetly seem to be progressing, it looks very tough and you are doing so great, everybody there seems so nice, especially your play nurse. Keep it up and now we can keep following you with pictures now. lots of love
    Fergal, Siobhan, Isabelle, Sophie,Euan and Ella

    ReplyDelete
  11. hannahFebruary 21, 2009 at 1:07 PM

    Hey naoise!!its hannah.
    the hannah montana stuff looks gr8 and i think i have the same pillow as you.
    were on or midterm now!!!
    i went to dundrum on thursday and went past the place where me and Sibeal got your teddy,bella.we all miss you soo much.
    lots & lots & lots & ( well you get the point!!!) love from hannah

    ReplyDelete
  12. UnknownFebruary 21, 2009 at 2:15 PM

    Hey Naoise Its Alice here saying hiii:)Im glad your feeling beter and by the way I love the blog.I went to Megans house with Isobel and Kate we rented a movie and made our own pizzas they were really nice.We are all missing you to bits and everyone thinks your the bravist girl in the world bye for now lov Alice xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxoooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo

    ReplyDelete
  13. carolFebruary 21, 2009 at 6:54 PM

    Hi Naoise, We are so impressed to see you on your wabble board and you completed allyour exercises. Now Naoise we are just so absolutelly wanting to know who the special visitors are going to be on Friday !!! Well I guess we will just have to wait like everyone else ! Lots and Lots of love Carol and gang XXX

    ReplyDelete
  14. gaga byrneFebruary 22, 2009 at 12:53 AM

    Hi Naoise great to see you lifting your arms.Your presies are fab.I bet if i asked you how are you you would say "I AM FINE" like you alwys say.We are all so proud of you.Love GaGa

    ReplyDelete
  15. gaga byrneFebruary 22, 2009 at 1:01 AM

    Hi Naoise,
    Great i can get on your blog now i have been trying for weeks.I am waiting for your latest news.I wonder would your celebs be from Ireland.Tell Paula your play nurse if she has money and drinks Guinness she will have no prob getting an Irishman.All is well here.I can not wait to go home and see you .All my love GaGa xoxoxo

    ReplyDelete

Subscribe to: Post Comments (Atom)