Friday, April 10, 2009
Day +57
Hi All, well today was even worse if that is possible :-(. I got a really high temperature during the night which has lasted all day. I feel really miserable and sad and I really want to go home so much. I didn't feel like eating much at all, I had a ice cream and a cream cracker. The firsts result from my biopsy came back but the full report did come back because it is a public holiday here and no one is working in the lab, its the same on Monday so it will be Tuesday before I get the full results. The first results confirm that I have GVHD in my lower gut, I still have to get the virus results and also need to find out if the stem cell transplant has worked. My rash is really bad and mummy has to put cream all over me four times a day which I really really hate. I got sick today too which hadn't happened ages :-(. I am so tired from being up all night again and am hoping I will sleep tonight and have a better day tomorrow. Lots of Love Naoise xxx
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Hi Naoise,
ReplyDeleteYou so deserve a break, I can't believe today was even worse. I can totally understand that you want to come home and forget about the whole experience in Newcastle. Try to keep focused on the end result, and how great recovery will feel.
You were really missed at Aine's party. Aine had a ball but really missed you.
I'm hoping and praying as much as I can that you'll have a better day tomorrow. Please Please god you'll be able to sleep a little, and feel a little happier tomorrow. This is so unfair, that such a pet like you is going through this.
When you reach Dublin soil again, hopping and skiping (with no pains) you will have to write a book about this whole experience. You've shown more strength of character than all the greats put together! I know you are probably sick of everyone telling you but you really are one trooper and I'm so proud to be related to you.
lots of love and best wishes,
Auntie Nina
Hi Naoise honey,
ReplyDeleteI am sorry I have not posted in a while but Mam and Dad have been keeping me updated and even though I have not posted you are never out of my thoughts. I am so sorry today was such a tough day honey. Please god you will get some sleep tonight, it is much easier to deal with the world when you have some sleep. Honey I can totally understand that you want to come home and believe me we all want you home. Please god you will all get some sleep tonight.
Lots of love,
Audy
hey......im annie , sadhbh and oisin and caitlins cousin...do you remember me ?????
ReplyDeletesadhbh and the others are all up in cavan with us :) it's my confirmation next month....can't wait
hope you get better soon , from,
Annie xxx :)
hi Naoise,
ReplyDeletereally sorry you still not getting any sleep & your having such a tough time It can't be easy especially when your so so tired & feelins so sick!
We are praying that the Dr's have good news for u on tuesday!
Take care luv maggie & séadna xxx
Hi Naoise I am in Cavan in my cousins house.I had my first piano lesson with Chrissie today.It was loads of fun.
ReplyDeleteFrom Sadhbh
Hi Naoise,
ReplyDeleteSorry to hear you are so tired,Jimmy and have come back from Lisbon and went to
about FOUR DIFFERANT churches and got mass every day for your recovery ,he may not have his hearing aid in at the moment but he will soon and then can look forward to you coming home healthy and pain free there is no one more deserving than you .Happy Easter Naoise Jimmy and Una
I'm so sorry to hear that you're feeling even worse. I really do hope you get some proper sleep soon and that you feel heaps better.
ReplyDeleteAoife (I'm a friend of Ms. Walshe)
Hi Naoise,
ReplyDeleteWe are so sorry you are feeling so rotten and fed up. Who could blame you pet? You are dealing with this better than many adults would. We really really hope you start feeling better soon and sleeping better. We are all rooting for you and wishing you good health very soon. We think about you every day and send you lots of love. We will write again soon. We think you are wonderful and admire you so much. Keep smiling Kiddo.
Loads and loads of love
Margaret, Vincent, Ross, Greg and Luke
xx xx xx xx xx xx xx xx xx xx xx xx xx
Hi Naoise,
ReplyDeleteSorry to hear you are not sleeping to well.Hope results of biopsy are clear and the docs can sort you out.Hope you got my texts as i was up country and could follow your blog on my mobile but was unable to comment.One night i was unable to sleep because i heard a strange animal outside my window ,i was afraid to open it in case it jumped in.They told me next morning not to worry he only eats the snakes it turns out it was some sort of a big lizard.It is very hot here noe ,no rain for four months ,we are all waiting for the monsoon rain in June/July so the fields flood and we can plant the rice.
We need about 3/4 inchs depth of water.
Its good that you are going to be out of your room for a day in Holland it will cheer you up a bit.As always you are in my thoughts and prayers.
Love GaGa xoxoxo
Hi Naoise,
ReplyDeleteIm so sorry you had such a bad day and feel so miserable. You really deserve a break. I totally understand that you want to go home honey, we all want you to come home too. I really home you get soon sleep tonight.
You are never out of my thoughts and prayers. Take care Naoise. Miss you so much.
Lots of love,
Aunty Chrissie x x x
hi
ReplyDeletei checked out i i think your the most bravest girl on earth
you really deserve a big hug when you come home
anyway you be home before you know it and everthing will be fine
love you loads
rachael B-)XxXxXxXoOoOoOoOoOoXxXxXxXxXxXx!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! bye
Hi Naoise,
ReplyDeleteSo sorry to hear you are feeling a bit down lately. It's totally understandable that you just want to go back home and I'm sure all your family and friends are just dying to have you back! I really hope that you have a good sleep tonight and that you will have plenty of energy to eat some lovely Easter eggs tomorrow! You are so brave Naoise. I hope that your rash and pains will go away SOON!! Happy Easter!
Emma xx
Ohh Naoise, Poor you!! Its so unfair how such a kind, nice person like you has to go through all this pain and trouble:( We went to Wexford for 3 days it was super!! It was sunny and there was a beach, basketball court + tennis court just up the road!!
ReplyDeleteSpeaking of basketball I better go out now and help my mom set up this new basketball net we bought today!!
Love you
Miss you
Thinking of you
Saying prayers for you
Ailbhe xxx and xxxxx from Tara
P.S dont get sick by eating to much Easter Eggs!!!!
Hi Naoise
ReplyDeleteReally really sorry to hear that you are so sick, how unfair!!! I think tomorrow will be a better day for you.
We had a sleepover in our cousins house, my little cousin is so funny, I(Sophie) let him paint my face, he kept saying how pretty he was going to make me look and then when he was finished he said "now you look like a dreadful womans poo" he is hilarious he is only 31/2 but so cute and funny actually he might be in your sister Aines montessori if she goes in belgrove, his name is Oisin.
Bet you will get loads of Easter eggs, I hope you feel well enough to eat them.
Tomorrow will prob be a quiet day in the hospital, so maybe you get a bit of sleep in the day.
Happy Easter!!!
Sophie and Siobhan(The Mom)
hi Naoise
ReplyDeleteHappy Easter!
hope u managed to get a good nights sleep & are feeling a bit better!
Take care luv Séadna & Maggie xxx
Happy Easter Naoise, Michelle and Carmel (if you are still there, hope you are OK)Naoise Hope you feel a little better and manage to eat an egg or two !! From Grainne, and all the Murphs xx
ReplyDeleteHi Naoise
ReplyDeleteI am so sorry that you're feeling even worse. I'm not surprised that you just want to come home - time always seems to go by so much more slowly when you're not enjoying yourself.
I see that my friend, Aoife, has written on your blog. She has been following your diary ever since I mentioned you to her. She does that Bugsy Malone routine too, and her face is just as expressionate as yours when she dances about!
Will the Easter Bunny visit the hospital today. One of my friends gave me a Cadbury's Creme egg egg (that sounds strange) and my sister very kindly 'helped' me to eat half of it. I'm sure that Aine would be glad to 'help' you to eat your eggs too.
I hope that you'll feel better very soon, and that the doctors will have good news for you on Tuesday.
Lots of love and hugs
Ms Walshe XXX
Hi Naoise
ReplyDeleteYou are such a brave girl & I wish all of this could just get better for you. We miss you so much too and are wishing for the day that you are better and can come home. One thing I know is that when you do come home, you will get a welcome at Dublin airport that surpasses that of any celebrity that has landed on Irish soil!
We had a lovely visit from Aine on Friday night when she came for a sleepover. I think though that she would have loved it all the more if you were there. When she got tired she needed her big sis to be around! I see she also loves to colour & draw and make things just like you!
It's a beautiful sunny Easter Sunday here... We are all chocolated-out!! To hear you have had an easier day & night is all we are wishing for here. YOu really deserve a break. Stay strong & know that we are all rooting for you and love you very much.
Lots of Love, Aisling
hi naoise,
ReplyDeletesorry your cakes didnt work out but it was a funny story.
hope you had a good Easter
love colleen in Australia