Tuesday, March 10, 2009

Day +26


Hello Everyone, today I got the best news ever!!! I am allowed out into the hospital grounds tomorrow!!! I can't believe it, it was such a surprise as my cells versus the donor cells went up which is not good. I need to have mostly the donor cells in my body and not mine. They went down to 51% but am now at 61%. I am so happy it will be really strange to go out and it will be really strange to put clothes on!! Today started off as normal, had cornflakes for breakie, watched a DVD. Then Andy the physio came down and we did some of my excercises he is coming to the St. Paddy's Day party so at least there will be a boy there now :-)! Then Elizabeth the teacher came and we did Maths during which I was sick! Sorry Elizabeth. Mum went into town and bought me a cool green tracksuit for next Tuesday! Its gone off to be washed lets hope it doesn't shrink!! After that Paula came and we made a fab necklace that Mum wants to borrow. I had a cheese wrap for my tea. Today seemed to fly by and I'm now so tired but so excited! Will let you know how I got on!!! Love Naoise xxxxx
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12 comments:

  1. UnknownMarch 10, 2009 at 1:56 PM

    hi naoise!
    you probably dont remember me but im cathy - i was the doctor who admitted you to the day ward on your last transfusion day before going to newcastle in temple street. Ive been following your blog for the last few weeks and i just wanted to tell you how amazing i think you are - you are one of the bravest, most articulate and funny people ive ever met and i feel honoured to have met you even if it was just that one time. by telling your story and showing the photos you are going to help hundreds of other children face their fears before going through a bone marrow transplant - they will now be able to read this and see what its like from your perspective instead of trying to understand horrible medical speak!! by the sounds of it you are on the way to recovery so keep up your spirits and keep writing oh and in case i dont get to say it next week Happy St Patricks day!! x cathy

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  2. UnknownMarch 10, 2009 at 2:07 PM

    Hi Naoise
    That is great news about your outing....a fantastic surprise! It must feel so exciting yet strange after such a LONG time stuck in your room.
    What a lovely posting from Cathy above - everything she says about you is SO true. I never thought about the fact that this blog might help others down the road facing into the same thing, so well done to you for keeping it up-to-date even in the days when you were at your lowest.
    A boy to your party...yippee...and a good looking one at that! I wish Cormac's physiotherapist looked like him!
    Have a wonderful stroll tomorrow, that's the best news, well done. Lots of love Aisling

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  3. UnknownMarch 10, 2009 at 2:16 PM

    Wow! You can go outside already! That's really great! I'm sooooooooooo glad 4 u! : )
    luv, Aine!
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    OOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
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    OOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
    P.S. Great idea 2 hav a paddys day party.

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  4. Sophie and Isabelle BurkeMarch 10, 2009 at 2:21 PM

    That is just the best news I have heard all day Naoise, especially since yesterday you sounded so fed up in the hospital room (and rightly so)Anyhow hope you enjoy your little jaunt tomorrow, it sounds like that Paddies days party is getting bigger everyday and I have to say that physio Andy looks very cute (tell your mum) Well look it is just brilliant to hear how well you are doing and you really are an inspiration.
    Siobhan(Isabelle and Sophies mom)

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  5. PaulaMarch 10, 2009 at 2:33 PM

    Hi Naoise, that is just the best news! We are so happy for you, you sooo deserve a little trip outside. Well done! Really looking forward to hearing how you get on.

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  6. @ilbhe xxxMarch 11, 2009 at 1:35 AM

    Heya Naoise!!
    Everyone here at the Murphy family says hi and good luck!! Its super you get to go outside!!
    All you have now to get now are green wig and green crocs!!
    Siobhan Burke my mom says your a brat!!
    Well I better go to school now.
    Wait I one last question!!?!! Did you ever do the Make A Wish Foundtain?? And if you did what did you wish for??
    Thanks a million and have a great time outside!!!!
    Love you loads
    Ailbhe
    xxxxxxxxoooooooooxxxxxx

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  7. maggieMarch 11, 2009 at 2:34 AM

    Hi Naoise,
    sorry we havn'g been able to post in ages, but we have been keeping a check on how your getting on!
    That's great news that u can get outside today! Really happy for u! the day will probably go much quicker!
    Sadhbh came over one saturday & herself & Séadna went rollerblading! they had great time Paula offered me a lend of her rollerblades - but i had to decline her very kind offer - cos i probably would have made a holy show of myself ;-))
    The girls thought it would be a great laugh (at my expense of course!!)

    Take care luv maggie & séadna xx

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  8. ChrissieMarch 11, 2009 at 3:13 AM

    Hello Naoise,
    That is brilliant news! Im so happy for you. Thats great that your allowed out for a walk in the hospital grounds. Hopefully going for a walk will make the day go a bit quicker and it will be lovely for you to get out of your room for a bit. Well done honey.
    Thats great that you have a lovely green tracksuit to wear for your Patricks day party and thats good that there will be a boy at the party!!
    I gave Nana Ruth another piano lesson last night, she is getting very good at piano!
    Take care honey! And enjoy your walk!
    Miss you. Love you loads,
    Aunty Chrissie x x x

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  9. EileenMarch 11, 2009 at 6:18 AM

    Oh Naoise, I am so delighted to hear you will be going outside. I bet even the sun will be shining for you even if you cant see it with the clouds!!! Very cute boy to have at your party - wish I was there. Dying to see the photos of you outside. Well done - you are such an inspiration to us all. Love Eileen xxx

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  10. gaga byrneMarch 11, 2009 at 6:59 AM

    Hi Naoise,
    I would like to endorse everthing Cathy says about you.Not only are you an inspiration to kids having a marrow transplant ,but for us all.How the thought of going outside,or playing a game with your Mum and Dad ,ALL THE SIMPLE THINGS lights up your life in spite of all you have been through,never moaning or complaining.We should all take a leaf out of your book.
    Well it is still very hot here,we need big rain otherwise the rice will die,what would you do if there was no rice?Everybody eats rice three times a day.Looking foward to your photos of your Paddys Day party.Wondering what you have lined up after that.Lots of Love GaGa

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  11. joanneMarch 11, 2009 at 12:20 PM

    WOOOW.NAOISE you get to go out!JOE here just read the note on the website it is so cool that you get outside again!What clothes will you wear something like Hannah Montanna or High school Musical.Weather is suppose to be nice too. We have Monday and Tuesday off school next week for St Patricks Day. Your Daddy Aine and Bridget were down last Saturday. Aine and Saoirse had great fun no fights. Have a good Day tomorrow. Love from us all here in Kildare

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  12. UnknownMarch 11, 2009 at 12:36 PM

    hey naoise its roisin that was so cool that you went out sidelots of love roisin

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